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STAT+: They were the 10% left out of life-changing treatments. Now these cystic fibrosis patients may finally get help
STAT+: They were the 10% left out of life-changing treatments. Now these cystic fibrosis patients may finally get help Vertex Pharmaceuticals revolutionized the treatment of cystic fibrosis. It also has unfinished business. The Boston drugmaker’s medicines for the genetic disease — which damages the lungs and other organs — have transformed the lives of patients,…
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STAT+: Leading ALS advocacy group roiled by infighting over money and priorities
STAT+: Leading ALS advocacy group roiled by infighting over money and priorities A blistering battle has broken out between the ALS Association and more than a dozen of its state and local chapters, which are resisting a move by the national headquarters to dismantle their offices and run operations around the U.S. Fifteen chapters claim…
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Opinion: Death by missing data: Uncollected racial and ethnic pandemic data will drive inequities for decades to come
Opinion: Death by missing data: Uncollected racial and ethnic pandemic data will drive inequities for decades to come At every stage of the Covid-19 pandemic, national reporting of racial and ethnic disparities in Covid-19 testing, diagnosis, disease severity, treatment, and vaccination by clinicians, public health organizations, and the media has been marred by frustrating data…
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